Linking People to Dravet Syndrome
Did you know
1 in 20,000– 40,000 children born have Dravet Syndrome fact from
Less then 40% of Dravet's patients are photosenstive fact from
15 to 25 percent of Dravet's cases report a family history of febrile convulsions or epilepsy fact from
Welcome to DravetData.com! Our aim is to link people with Dravet Syndrome infomation and personal life experience of those living with this condition.
Our plan is to educate you and help you find the information you are looking for. Within these pages you'll find a multitude of links to information pertaining to Dravet Syndrome and associated topics. All external links open in a seperate page. All the personal stories are supplied by families affected by this condition and outline the various issues they face on a day to day basis. If you have a story you would like to share then please feel free to submit your story here. I also welcome any comments, so please submit your thoughts here.
Dravet Syndrome is also known as SMEI (Severe Myoclonic Epilepsy of Infancy), other titles include: SME and Epilepsy with polymorphic seizures.
What is Dravet Syndrome? In Shazza Language A laymen's guide to Dravet Syndrome symptoms, treatment options and more importantly what drugs should likely be avoided.
What is SMEB? In Shazza Language The sister article to What is Dravet Sydrome? In Shazza Language describing SMEB (Severe Myoclonic Epilepsy Borderline) and the differences between SMEB and SMEI / Dravet Syndrome.