Dravet Syndrome Stories From Those Who Know

Submit Your StoryDesigned to give you insight into raising a child with Dravet Syndrome, living with Dravet Syndrome or having a brother or sister with Dravet Syndrome.

 

National Walk for Epilepsy 2009 - Team Dravet


Find more videos like this on Epilepsy Foundation

Earlier this year a group of families affected by Dravet Syndrome came together for the National Walk for Epilepsy in the US to raise money and awareness for Dravet Syndrome and the IDEA League, here is their story.

An emotional look at Dravet Syndrome. A mum describes how important it is to get an early diagnosis for Dravet kids. Featuring the Dravet Quilt of Hope.

Those wanting to know more about the quilt can do so here.

 

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Recommended Links

IDEA League Famnet Support Group forum for those caring for individuals with Dravet Syndrome. Brought to you by IDEA League (International Dravet Syndrome Epilepsy Action League).

Shazza's Offering Dravet's information, fun activities for the kids, disability information and places to find assistance with disability and epilepsy issues world wide and more locally to South Australia.