Dravet Syndrome Stories From Those Who Know
Dannielle's Story
by Dannielle Goodwin

Photo #2 (Top to Bottom): Daniel, Dannielle, Sophie and Eric

Yours sincerely
Dannielle Goodwin
Since this story was published Dannielle has gone on to have three children, Jane her youngest daughter has been discovered to have the SCN1A gene mutaiton and has more recently started having seizures. You can read Dannielle's full story by clicking on the link below.
Download Dannielle's Purple Day Story published in the Latrobe Valley Express (pdf file format)
Used with permission, Latrobe Valley Express www.lvexpress.com.au and originally published on 23rd March 2015.
Dannielle is currently doing some fundraising for Dravet Syndrome Research, if you would like to contribute please go to the Purple Day - Epilepsy Awareness - 26 March 2015 Fundraising Site for more information.
Dannielle's Extended Story
Click on this link to view a pdf version of Dannielle's Story (The Extended Version updated 3 July 2014) includes:
- Where I was raised as a child
- Some facts
- Getting in rolled for Pre School
- Getting in rolled for Primary School
- Having EEG at the RCH for 6 weeks with 1 week of 24hr video monitoring
- Going to Secondary School
- Getting employed for my first job
- Getting referred to see a neurologist that deals with adults
- Having my first date
- Getting Engaged
- Getting married for the first time
- Moving into our brand new house
- Finding out I am expecting for the first time
- Having a baby for the first time (Sophie)
- Baby number 2 (Eric Barry)
- Baby number 3 (Jane)
- Baby number 3 (Jane) Diagnosed as being SCN1A Positive
- Jane's first seizure
Submitted 3 July 2014 (by Dannielle Goodwin.).
Dannielle Recommends Visiting
New England Journal of Medicine Article about Dannielle - Timing of De Novo Mutagenesis - A Twin Study of Sodium-Channel Mutations (Dannielle was a participant in this study)